Living with HIV and Dying with AIDS:Diversity, Inequality and Human Rights in the Global Pandemic Lesley Doyal
Diary of a Dying Aids Patient: Death by Betrayal: Shirl A. Jefferson
Much of today´s literature on end-of-life issues overlooks the importance of 1970s social movements in shaping our understanding of death, dying, and the dead body. This anniversary edition of Lyn Lofland´s The Craft of Dying begins to repair this omission. Lofland identifies, critiques, and theorizes 1970s death movements, including the Death Acceptance Movement, the Death with Dignity Movement, and the Natural Death movement. All these groups attempted to transform death into a ´´positive experience,¿ anticipating much of today´s death and dying activism. Lofland turns a sociologist´s eye on the era´s increased interest in death, considering, among other things, the components of the modern ´´face of death¿ and the ´´craft of dying,¿ the construction of a dying role or identity by those who are dying, and the constraints on their freedom to do this. Lofland wrote just before the AIDS epidemic transformed the landscape of death and dying in the West; many of the trends she identified became the building blocks of AIDS activism in the 1980s and 1990s. The Craft of Dying will help readers understand contemporary death social movements´ historical relationships to questions of race, class, gender, and sexuality and is a book that everyone interested in end-of-life politics should read.
Patient-Directed Dying:A Call for Legalized Aid in Dying for the Terminally Ill Tom Preston M.D.
Following the death of her father, journalist and hospice volunteer Ann Neumann sets out to examine what it means to die well in the United States. When Ann Neumann´s father was diagnosed with non-Hodgkin´s lymphoma, she left her job and moved back to her hometown of Lancaster, Pennsylvania. She became his full-time caregiver - cooking, cleaning, and administering medications. When her father died, she was undone by the experience, by grief and the visceral quality of dying. Neumann struggled to put her life back in order and found herself haunted by a question: Was her father´s death a good death? The way we talk about dying and the way we actually die are two very different things, she discovered, and many of us are shielded from what death actually looks like. To gain a better understanding, Neumann became a hospice volunteer and set out to discover what a good death is today. She attended conferences, academic lectures, and grief sessions in church basements. She went to Montana to talk with the attorney who successfully argued for the legalization of aid in dying, and to Scranton, Pennsylvania, to listen to ´´pro-life´´ groups who believe the removal of feeding tubes from some patients is tantamount to murder. Above all, she listened to the stories of those who were close to death. What Neumann found is that death in contemporary America is much more complicated than we think. Medical technologies and increased life expectancies have changed the very definition of medical death. And although death is our common fate, it is also a divisive issue that we all experience differently. What constitutes a good death is unique to each of us, depending on our age, race, economic status, culture, and beliefs. What´s more, differing concepts of choice, autonomy, and consent make death a contested landscape, governed by social, medical, legal, and religious systems. In these words, Neumann brings us intimate portraits of the nurses, patients, bisho 1. Language: English. Narrator: Suzanne Toren. Audio sample: http://samples.audible.de/bk/adbl/025357/bk_adbl_025357_sample.mp3. Digital audiobook in aax.
Dying Inside:The HIV/AIDS Ward at Limestone Prison Benjamin Dov Fleury-Steiner, Carla Crowder